Tag Archives: disability

New data section offers statistics and info on disability in America

About Tara Haelle

Tara Haelle (@TaraHaelle) is AHCJ's medical studies core topic leader, guiding journalists through the jargon-filled shorthand of science and research and enabling them to translate the evidence into accurate information.

What do depression, diabetes, dyslexia, prosthetics, hearing loss, obesity and heart disease all have in common? All are considered disabilities or associated with increased risk of disability. About a quarter of American adults have some type of disability, according to the US Centers for Disease Control and Prevention, including two in five adults over age 65 have a disability.

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What’s being missed in coverage of Medicaid work requirements

About Joanne Kenen

Joanne Kenen, (@JoanneKenen) the health editor at Politico, is AHCJ’s topic leader on health reform and curates related material at healthjournalism.org. She welcomes questions and suggestions on health reform resources and tip sheets at joanne@healthjournalism.org. Follow her on Facebook.

Photo: Andreas Klinke Johannsen via Flickr

The Trump administration in January gave a long-expected approval for states to proceed with work requirements for their Medicaid beneficiaries, via this guidance; Kentucky was the first to get its waiver approved and other states have waiver requests at various stages in the process.

That includes Arkansas, Arizona, Indiana, Kansas, Maine, New Hampshire, Utah, Wisconsin. Also, North Carolina could add work requirements for its potential Medicaid expansion population if the state’s Democratic governor ever gets expansion through the GOP-dominated legislature. Continue reading

New tip sheet offers assistance in covering LGBT aging issues

About Liz Seegert

Liz Seegert (@lseegert), is AHCJ’s topic editor on aging. Her work has appeared in NextAvenue.com, Journal of Active Aging, Cancer Today, Kaiser Health News, the Connecticut Health I-Team and other outlets. She is a senior fellow at the Center for Health Policy and Media Engagement at George Washington University and co-produces the HealthCetera podcast.

Image by Ulrich Joho via flickr.

Image by Ulrich Joho via flickr.

Covering LGBT aging can be an exercise in frustration for journalists. Though more older adults are living openly as LGBT these days, health data on this segment of the population often is missing from government reports and statistics, according to Matthew Bajko, assistant editor at the Bay Area Reporter.

Bajko, who covers aging, politics, and HIV/AIDS for the San Francisco-based paper, has written a new tip sheet for AHCJ members on covering aging among the LGBT population. Continue reading

NPR explores the right to at-home care for disabled patients

About Andrew Van Dam

Andrew Van Dam of The Wall Street Journal previously worked at the AHCJ offices while earning his master’s degree at the Missouri School of Journalism.

When it comes to summarizing the NPR news investigation “Home or Nursing Home,” you really can’t do much better than its tagline: “America’s empty promise to give the elderly and disabled a choice.”

The package is anchored by Joseph Shapiro’s wonderfully written profile of the family of a young woman who lives at home, despite the need for 24-hour intensive care. She’s 20, and Illinois Medicaid will stop covering her care as soon as she hits 21. Why?

It’s expensive to care for Olivia at home: nurses cost about $220,000 a year. Still, that’s less than half the cost of what the state counts as the alternative — having her live in a hospital. The Welters figure they’ve saved the state millions of dollars by keeping her at home.

But when she turns 21, the state changes how it measures cost. For an adult, the state says the alternative is no longer a hospital — it’s a less expensive nursing home.

At 21, Olivia and thousands like her around the country enter an uncomfortable gray area rife with lawsuits, acts of government and supreme court decisions. In fact, families like hers have lately been suing states – and winning. Shapiro explains how.

In 1999, the U.S. Supreme Court ruled, in Olmstead v. L.C., that under the ADA, people with disabilities often have the right to live in the community rather than in institutions. Since then, other federal laws and policies have said that states have an obligation to provide more home-based care. The new health reform law is filled with incentives for the states to spend more.

But federal law is contradictory. An older federal law, the 1965 law that created Medicaid and Medicare, says states have an obligation to provide nursing home care. Home care programs are still optional.

Also not to be missed: Shapiro’s profile of a patient advocate that doubles as a seamless history of how the system reached this point. A timeline and interactive graphic round out the package.

Waiting period affects 2 million disabled Americans

About Pia Christensen

Pia Christensen (@AHCJ_Pia) is the managing editor/online services for AHCJ. She manages the content and development of healthjournalism.org, coordinates AHCJ's social media efforts and edits and manages production of association guides, programs and newsletters.

Nearly 2 million disabled Americans “fall into a twilight with the first monthly Social Security disability payment, for they then must wait two years to become eligible for Medicare,” according to The Oregonian‘s Anne Saker.

With at least 15,000 in that position in Oregon, Saker tells the story of Sue Sherman, diagnosed last year with pancreatic cancer, who discovered she must wait two years for Medicare to cover her. “Only 20 percent of pancreatic cancer patients live more than a year past diagnosis,” Saker reports.

Saker outlines the history of the waiting period, statistics about how many people in that situation go without insurance and the machinations in Washington, D.C., over the waiting period, but weaves it all into Sherman’s story, keeping a human face on the issue.

She looks at how Sherman’s illness and lack of coverage affects her family and includes an observation by Sherman’s daughter that the costs of her care will be passed on to everyone else.

As Trudy Lieberman says in her blog at CJR.org, “Her plight illustrates the traps that snare the disabled in every state.” Lieberman explains how people get caught in this waiting period and will be stuck with another waiting period with today’s launch of high-risk insurance pools.

With 2 million people affected, this is a story that should be told in every state. Lieberman wrote in 2008 about putting a human face on the proposed health reform plans. Reporters would be smart to heed that advice as they report on how the new law will be enacted.


Health care reform has passed: What’s next?

Calif. SSI payouts insufficient, lacking in oversight

About Andrew Van Dam

Andrew Van Dam of The Wall Street Journal previously worked at the AHCJ offices while earning his master’s degree at the Missouri School of Journalism.

Capital Public Radio’s Kelley Weiss explored how cuts to California’s Supplemental Security Income were impacting older disabled Californians and, in a second story, the lack of oversight in the massive state program. According to Weiss, the state doesn’t track how the money is spent by recipients or whether the $845 a month is enough to live on. Weiss even found recipients who admitted using the money to buy everything from beer to crack cocaine.

When Weiss questioned the director of California’s Department of Social Services, which oversees the state’s portion of SSI, about audits or reports that evaluated whether the program is working, he had a somewhat surprising answer:

“I don’t have any, I don’t have any background on this…yeah, we’ll have to set up a different time for that.”

Learn more about the national system here.